Getting back to normal

After a few bad days and nights we are getting Amy back into routine after being fitted with the harness. It is obvious that she is frustrated and a tad uncomfortable, but hopefully she’s on the way to accepting it.

Yesterday we saw a Paediatrician about the hernia’s, her small fontonelle, birthmark and hips. I was most worried about the fontonelle closing as I had a friend a few years ago whose little boy this happened to and he ended up having to have his skull opened by surgury and enlarged to give his brain room to grow. It was totally freaking me out and this added with the hips and hernia’s put me almost beside myself with worry. The Paed gave her a good going over and declared everything to be OK. I’m sure my shoulders dropped about 10cm with the relief. So now it is just the hips that we have to contend with and suddenly that doesn’t seem so bad in terms of what could have been. She slept a lot better last night but probably out of sheer exhaustion from screaming most of the day.

While in the waiting room at the Doctors a little girl came in with her mum, draped in a blanket that looked surprisingly familiar. It was one that I had made for Project Linus (A group that makes blankets for the sick children in hospital). I asked her where she had got it (thinking that maybe someone else had done a similiar design to mine) and she said that it was given to her daughter when she was very ill in hospital and that a lady had made it. I asked her if she knew who and all she knew is that she lived in Fraser. “That’s me” I yelped. “I made that blanket”. The mum said that it was her childs favourite blankie and she never went anywhere without it and it had gotton her though some awful times in hospital. She said she had often thought about the person who had made it and whether she should send her a card to say thanks. I was so thrilled that one of my blankets had made a little sick child feel so safe and secure, just the way that my kids love their blankets. A very worthwhile cause!

Okedokey that is it for now. Have a great weekend.


5 thoughts on “Getting back to normal

  1. What a lovely story about the blanket, one to cherish. I am so glad that all Amy’s other bits and pieces 🙂 are all OK and hopefully she is settling in to her brace. Talk soon Pen

  2. Is everything a bit more relaxed today!!!
    I am hoping so. Stay positive about the brace and remember how fast time flys by…this will all be over before you know it!

    thinking of you all.
    love Katie xxx

  3. Hi Frannie

    Am so pleased all went well with Amy yesterday at the paedeatrician. So much has happened in your life in the last month or so since I saw you – you are justified in feeling overwhelmed at times. We all feel it and the more of us who say so the better we all feel! We have been the house of vomit and poo (I know too much info!) this week as Elias has had gastro. I thought we were over it this morning but he had a Mount Vesuvius vomit just as I was about to head out for an outing – so home we remain! Lots of love to you all, and especially you and Amy,

    Jane

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